Tuesday, May 31, 2011

Kira said an A word!

Kira is not as comfy as she could be tonight, so she is making little moans, gurgles and breathing heavily. Aaron came running out to me in full on "tattle" mode, yelling, "Momma, Sissy said an A word!!" Aaron calls any curse words, A words. I asked him what she said. He answered, " She said a-a-a-a- word that I shouldn't say, only a word Daddy should!"

Well, considering the fact that he is 4, and will not repeat a curse word, and Kira cannot speak at all.... I guess I will never know what bad words she spews at her baby brother when it's just the two of them. 

Friday, May 20, 2011


This will be an area for me to post short little random things that I would like to share.

5/20... Last night there was a lady bug on Kira's pillow, right next to her face. I thought that was pretty cool! I always feel a sense of joy when I see them, not sure why. Is it said that if a lady bug lands on you, it's good luck? How does that go? Either way, what about if they want to share your pillow and go sweet night night with you?

Saturday, May 14, 2011

Welcome to Holland

When Kira was an infant, I came across the most amazing poem. I sat in front of my computer screen reading it, with literally a soaked face. I had tears pouring out of both eyes, ( would be funny if it were only one eye, huh!) I just could not believe what I was reading. This Momma that wrote it, has a special needs child, and she wanted to convey to the "outside world" what it feels like when you get the news that your child is not completely healthy. This poem took my emotions, my feelings, my words, my thoughts, my rage, and placed it into this poem that made me step back and say, "Yes, Holland is amazing. Different, but amazing." I share this poem with the staff at the hospital, and I encourage you to please share it with a family that has a special needs child. It is such a deeply penetrating poem, and can help many people. She just hits the nail on the head!

Friday, May 13, 2011


I have come across many people who tell me they have been wanting to ask me certain questions about Sis, but didn't know how to approach it. I want it to be known, that I am an open book with her. I try to cover most aspects of her disability, but I'm sure there are still things that someone can be curious or concerned about. I know the word 'disability' can be a 4-letter word to some people. I often hear that that word should be banned, because special people are differently abled, and they do have the ability to learn and progress. I completely agree with that, and most special needs people are, in fact, differently abled. But let's be honest here, Kira is asleep. There's not much one is able to do when the brain nor body are in an awake state. I would love for her to be categorized as "differently abled" but alas, she's just a snore bucket. * Said in the most adoring, respectful, and loving way imaginable. ;)*

So this post is an open forum opportunity. If there has ever been something you have wondered about, or something that popped into your head as you are reading this now, ask away.