Thursday, March 13, 2025

*KNOCK KNOCK* Is anyone still out there? It has been maaaaaaaany moons since we last spoke. I missed you all! :) In Keeping up with my tradition, I am only posting when Kira girl is in the hospital. Sorry to turn this blog into basically a "Dear diary" of sorts for Kira's illnesses. I realized that I never even updated with what happened when she went in for her port replacememnt surgery. Long story short, it was the scariest admission she has eve had. She was in for 5 weeks and coded for the first time. If you go back to Sissy's origins, you will see that I always knew her life would be short, but time after time, this fighter keeps showing me what a warrior she truly is, and God keeps letting me know He is right there. That admission though...10 minutes of respiratory arrest, how could I not think that was "it"? Miraculously, it wasn't. <3 This beautiful human has had an amazing almost 3 years of good health. As much as we love our friends at Kaiser, We love our home more! But, in true Kira Jean Beauty Queen fashion, she was in the throws of a serious illness before I barely knew what happened. We have been in the hospital now for 5 days, and we are experiencing SO many firsts. Who knew that after 19 years, there were still "firsts" to be had. Kira has pneumonia (surprise!) with 2 different bacteria in her precious lungs. She only presented with signs of a possible illness on Friday, and when I brought her in on Sunday, she was septic and went into septic shock. Less than 24 hours after arriving to the emergency department, she developed C-diff, and a GI ileus. So she has an infection with bacteria in her lungs, and an infection with bacteria in her intestines. The tricky thing here is that the infection in her intestines is caused by the antibiotics treating her lungs, and the antibiotics to treat the intestinal infection battles against the antibiotics for the lungs. Tricky, tricky, tricky. Something that I am not a fan of, and don't come for me, is that she was admitted to the adult side of the hospital since she is now over 18, instead of the peds and PICU floor that we have known all of her life. Let me tell you.... culture shock. The rooms here do not have any cute, colorful, or uplifting decor- instead, they are crammed tightly with walkers folded against the wall and a commode (toilet) sitting politely next to my chair-bed. One may say, "Who cares what the room LOOKS & FEELS like, it's about the care given." I would tell that person that they are absolutely correct, and remember when I started this topic saying, "I am not a fan"... We miss PICU and there needs to be a way for her to be treated over there, by a team who KNOWS her extrememly unique and fragile ways (also, who have known her most of her life and genuinely have love for her, so her care is top notch.) Nothing like getting a crash course in the same things you are learning about in class...

2 comments:

Kayla DeGeorge said...

Sending you all the loves and hugs from this DeGeorge family of mine. Warrior women you both are <3

Brittany Sorber said...

Thank you for sharing an update on sweet Kira! My prayers and thoughts pour out to Kira and her family as she re-visits the hospital with unfamiliar walls—I get wanting to be in PICU with familiar faces and with staff that knows and truly lives this sweet girl BUT now there are new faces that will care so very well for her and fall in love with her and tend to her needs appropriately!

You are a strong mommy! Keep going! God is with you all and has a clear hand over Kira’s life!

Praying for this family,
-Britt ❤️